Pancreas-Kidney Transplantation: Links

Navigation

Home

The Technical
Background
Immunology
HLA & PRA
Drugs
Procedures
References
Glossary

The Personal
A Story
Surgery

The Other
Journal Articles
Acknowledgements
Contact Us
Links
Disclaimer

Links
  • Transplantation
  • Diabetes
  • Kidney Failure
  • General Medical Links
  • Immune System/Tissue Typing
  • Immunosuppresant Drugs
  • Global Resources
  • Other Topics
  • Personal webiste
  • Transplantation:

    Transplant Recipients International Organization
    Concerns itself with all aspects of organ transplantation: Becoming a candidate, organ donation, receiving a transplant, family support.

    University of Edinburgh: Kidney Transplantation
    Documentation of a dissection project with an emphasis on kidney function and transplantation.

    United Network for Organ Sharing
    The one place to start reading about transplant issues. Information on organ procurement, distribution, waiting lists, and transplant statistics, and lists transplant centers throughout the US.

    International Pancreas Transplant Registry
    The most complete statistics available on pancreas transplantation from University of Minnesota.

    TransWeb
    This site covers all transplant types with general information.
    Also a list of
    Organ Procurement Organizations by State

    Pancreas Transplantation:

    Insulin-Free World Foundation
    A good source to start your research.
    Also
    Worldwide List of Pancreas Transplant Centers

    TransplantBuddies.org
    I manage this site, which has a number of transplant-related message board communities. Visit the Kidney and Pancreas Forum. Free registration is required to post messsages

    Current Status of Pancreas Transplantation for the Treatment of Type 1 Diabetes Mellitus (August, 1997).

    ADA Journals
    Some are highly technical, but very informative. Covers all aspects of diabetes, including pancreas allografts, and beta cell transplants. (Requires you to register before using the archive. Some texts are free; others may have a charge.)

    Transplant News Network
    News on transplant discoveries, developments, and decisions in the worlds of science and politics.

    Top of Page

    Diabetes:

    Juvenile Diabetes Research Foundation International
    JDF is the premier volunteer fundraising organization to support diabetes research in the US and around the world.

    Insulin-Free World Foundation
    listed above as a transplant resource also has lots of other information about the science and the politics of diabetes.

    American Diabetes Foundation
    Has a very broad cross-section of information; one of the more politically important groups in the US. Their position on most nutrition matters is terribly outdated and not worth any attention at all, but otherwise an OK website.

    Top of Page

    Kidney Failure:

    National Kidney Foundation

    WebMD-Kidney Failure: Open Discussion:
    Post questions, share information with others in similar circumstances. Covers patients facing dialysis, on dialysis, and those with transplants (free registration required).

    Nephrology Analytical Services
    Lots of information, some pretty technical, some user-friendly.

    American Journal of Kidney Diseases
    A wealth of information; unfortunately you have to be a member of National Kidney Foundation or a subscriber to access these articles. Your public library may be a member.

    United States Renal Data System (USRDS)
    An absolutely huge set of statistical data; covers almost ever topic and parameter that you could think up. Not easy to interpret, and statistical data is very often a bit misleading to a consumer, but it is interesting anyway.

    Nephron Information Center
    A great resource. A collection of very specific forums to which you may post and receive answers about a particular phase of kidney disease.

    How Peritoneal Dialysis Works
    A series of animations give the basics of the procedure.

    Peritoneal Dialysis International
    A subscription-only site, but has some articles and information free.

    PD Connections
    A no-membership section of PDI. Quirky search feature.

    Top of Page

    General Medical References:

    WebMD

    Medscape

    Merriam Medical Dictionary
    An excellent searchable resource.
    Also:
    Online Medical Dictionary
    Very good source, more detailed than most, but a bad search tool.

    Medical Tests and Results:

    Renal Blood Lab Values
    Not extensive but it will make clear the basics and compare the usual dialysis values to the "normal" values.

    Southwestern Medical Center
    A very complete table of reference values, though without much explanation.

    The Merck Manual
    More general info in one place than any source.
    Also from Merck:
    Lists of diagnostic tests

    Labquest Converter
    Changes selected lab values from US system measurements to SI (Canadian and EU) system measurements with just a click. Great tool.

    MayoClinic.com
    A general interest site; superficial, no detailed info, lots of medical news sound-bites, and lousy site navigation with a finicky search tool. Why do I even list it? Just to let you know that there is much better stuff out there. Mayo might be great for high-tech medicne, but this webiste is just a silly toy.

    Medical Tests Library-MDAdvice.com
    Arranged alphabetically, but frequently with an odd keyword, for example instead or "creatinine" or "serum creatinine" you have to look up "blood creatinine". So search under the list of "blood" or "urine" tests for most things. A goofy, amateruish system of indexing, but the data is OK.

    Top of Page

    Understanding the Immune System and Tissue Typing:

    National Cancer Institute / NIAID: Immunology
    A detailed discussion of the intricacies of immune response.

    General Immunology
    By Douglas F. Fix. Without a doubt the best site on this topic ever created. Complex langauge, and a very long document to read, but it gives a better understaing of the complexities and interactions of immune cells and chemicals.

    Top of Page

    Immunosuppressant Drugs:

    Rx List
    The best fuzzy search engnie out there. Not quite the 'Full Prescribing Information', but very good data.

    TransplantBuddies.org Drug Information
    Drug info in two categories, Patient Information is more user-friendly, but Full Prescribing Information is much more detailed.

    Manufacturer-sponsored Financial Assistance Programs

    Top of Page

    Global Transplant Resources:

    Three links that locate transplant resources by Province, and give statistical info:
    Canadian Association of Transplantation
    University Health Network: Transplantation
    Canadian organ procurement programs

    Eurotransplant.com In German or English, a wide-ranging site:

    Top of Page

    Other Topics:

    Additional information on experimental transplantation to HIV and HCV infected recipients
    Also:
    HIV and Solid Organ Transplantation Johns-Hopkins Medical Center
    Organ Transplantation for HIV-Positive Patients UCSF

    Top of Page

    Personal Websites:

    In Focus: A photojournalist's journey through kidney failure
    A terrific place for striking visual interpretations of the processes of dialysis, evaluation, transplant, and recovery. A unique treatment of the subject.

    Holly's Humble Home Page

    Peter Lundin's Corner

    Gil's Home

    Barbara's Kidney Website

    Living Organ Donors.org

    Jan & Walt's Living Non-related Donor Page

    Christine's Dialysis Pages

    Top of Page